Heartwarming moment toddler with rare condition sits up for first time

Kristine Tarbert
Lifestyle & Entertainment Producer

This is the milestone moment a little girl, who has spent her whole life in hospital due to a rare syndrome, sat up by herself for the first time.

Gracie Heater, 19 months, lives with Apert syndrome, a genetic disorder that causes a fusion of bones in the skull and spine which can inhibit the brain’s development.

She was diagnosed with the condition when her mum Saskia Hansen, 25, went into premature labour at seven months.

Gracie lives with Apert syndrome, a genetic disorder that causes a fusion of bones in the skull and spine. Photo: SWNS

Doctors in St Luke’s Presbyterian Hospital in Colorado, USA, delayed Saskia’s labour for four weeks until she delivered baby Gracie on October 21, 2016.

After she was born, Gracie was rushed to the hospital’s NICU, where doctors discovered her respiratory system was also deformed and placed her on a ventilator.

But now cradled by her proud dad she was able to not only sit but also stand up.

Dad helps Gracie get to her feet. Photo: SWNS

“You wanna try standing,” the dad can be heard saying. “There you go, I got you.”

The moment was filmed by mum who was overjoyed at seeing the progress her little girl has made.


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