Brave Evie fighting cancer for the fourth time

At just six years old, Evie Weir has already faced more than most adults would in their entire lifetime.

Diagnosed with neuroblastoma when she was just two, brave Evie has been fighting to beat the disease for the past four years.

And after her third relapse in January, her parents Sarah, 34, and Joshua, 35, from Penrith, NSW, are hoping a trial drug will perform the miracle they’ve been praying for.

“We’re really hoping that this works the miracle. We’ve probably exhausted all our options after this,” mum Sarah told Be exclusively.

“It’s just a waiting game but at the same time we’re enjoying the fact she’s happy and doing well at the moment and enjoying normal kid things as much as possible.”

It was August 2013 when Evie started her first round of treatment, which lasted for 14 months. Sadly her first follow-up scans showed the cancer had returned almost immediately.

At three and a half years old, Evie had neurosurgery and another eight months of chemotherapy. Her scans remained clear until September 2015 when she had her second relapse.

Things were looking up when further scans and radiation treatment saw her condition improve significantly.

“The doctor said, 'Ok let's let her go and see how she does', and we had almost a year where she was having clear scans and no treatments,” Sarah said.

She was able to enjoy spending time on holidays with her family, playing with her older sister Alicia, 8, and doing everything a normal five-year-old should be doing.

They were desperately hoping she’d beaten the disease for good.

Sadly scans in January of this year showed new tumours had appeared and Evie, who was just about to start school, suffered her third relapse.

“It’s hard, it’s depressing and it’s one of the worst things you can go through especially as a parent, because your job is to protect your kids. You feel so helpless,” Sarah says.

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Writing about Evie’s journey on a blog called Pray4Evie, Sarah says she’s allowed herself to have bad days but has learnt how to cope with those feelings.

“I’ve allowed myself to feel the darkness but also try and find the positives because there is always something good,” she says.

“At the end of the day I still have little girls to look after.”

Incredibly, Sarah says throughout all this Evie has been her rock, rarely without a smile on her face, and constantly gives her the strength to keep fighting.

“Evie has been so incredible. There have been times I’ve gotten a bit teary and she’s telling me, ‘It’s ok mummy’ like she’s the one comforting me,” Sarah says, her voice breaking.

“To see her smiling throughout, it gives me such strength and you know you just have to keep fighting for her.”

The trial Evie is now on has already seen success in adult melanoma patients. Similar to immunotherapy, she has one half-hour dose every three weeks and after four rounds a scan to see if the cancer is responding.

“It’s a very real possibility that we could lose her and I’ve learnt to allow myself to feel that but not dwell on it,” Sarah said.

“But we’re not there yet and if I dwell on that for too long I will miss what’s going on right now and right now she’s happy and she’s here.”

September is childhood cancer awareness month.

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